Sunday, September 24, 2006

Watching the miles tick over


As of this past Friday the countdown is Thirteen Weeks. I found that my prescription plan charges me on a per-prescription basis -- it doesn't matter whether it's a 30-day supply or 90 days. Wish I'd known that earlier. In any case, I received the last three boxes. The unopened boxes are numbered 37-40, 41-44, and 45-48. There is one syringe left in the open box. The end of this business is in sight. On the road to the town where I grew up, there was once a sign that said it was nine miles away. I remember passing that sign and it seemed that the last nine miles was half the trip.

My job has gone nuts. I clocked 50 hours last week and the week before. Between making up for the absence, looming deadlines, and the disturbing realization that the product that was sold is not deliverable without huge changes, the project is getting exciting. Exciting projects are like exciting plane rides. Boredom is much better. I've let the overall project manager know that I'd rather not travel unless there is something very specific to be done that only I can do and only in the faraway city which would justify burning two days worth of travel. In other words, I don't want to travel. At this point, there's little reason for me to climb onto a plane.

I've gone back to the Friday night Interferon schedule. I thought about taking the shot earlier in the day, but couldn't bring myself to mess up a perfectly decent Friday afternoon. This Saturday and last I was able to accomplish a bit -- worked on the car, put up some shelves in Son's room, even a bit of electrical work installing a new outlet (the shelves cover up the old one). But today and last Sunday both I've been moving pretty slow. I had my suspicions, and I found out why on my trip to the doc last Thursday. My hemoglobin count is down again -- around 9.1. I knew it would be low. I can feel it. But, as the doc points out, I'm tolerating the anemia and I'm in the home stretch. No talk of dose reduction.

My friend Bob who went through treatment some five years ago asked me to call another friend of his. Larry finished treatment last year and relapsed. I had mentioned the possibility that statins (anti-cholesterol drugs) might be an alternative. But that's still on the horizon. It turns out he was taking only 1000 miligrams (I'm taking 1200 mg) of ribavirin. When he started breaking out with a skin rash, his doctor reduced the dosage even further. He got himself into Mayo and the liver specialist there said he'd have had him on 1200 mg. daily, and he'd have sent him to a dermatologist for the skin rash. The sides we treat symptomatically; the object is to stay on treatment.

Naturally Larry is weighing options. Treat again? He's over 55. The Mayo doc says he has a 30% chance of developing cirrhosis in 20 years. He has moderate liver damage, this after, in his words, "drowning" his liver in beer for years. He's a construction worker and, again in his words, "That's what construction workers do." He's now a non-drinker. Can his immune system hold the infection off? Or as he gets older will the virus start to move faster?

I had to interrupt our conversation to take a work call, but I'm going to check in with him again. One thing that I'm concerned about is that you can't always count on a disease to give you a nice long linear slide. I remember when my father fought colon cancer he was in decent shape and suddenly took a bad turn. He was dead in a couple of weeks.

I recall when 55 seemed like a terribly advanced age. Now it's only a few years down the road. This mortality thing is really annoying.

Energy and persistence conquer all things.
— Benjamin Franklin

2 comments:

Sue, Toronto said...

You are definitely in the home stretch. Sounding good too!

I also remember when 55 sounded old - now, only 6 years away and not at all old. It's all a matter of perspective...

Just to give some encouragement, am now over a year post tx with continued svr, feel fanatastic, working like crazy and involved in a million projects, with both work and family. Tx, despite being less than fun, was totally worthwhile, in my opinion.

Best wishes for the coming weeks. May they pass quickly for you.
Sue

Chris said...

Hi, Sue -- Nice to hear from you again. Congratulations especially for your successful recovery and being able to get on with business! I've appreciated the encouragement. It's definitely winding down. I'm just getting impatient.